Celiac Straight Talk

Our Reach Beyond Celiac Ambassadors discuss how a celiac disease diagnosis can affect family relationships and how to navigate eating safely when some family members just don’t seem to understand your diagnosis.

In this episode, Reach Beyond Celiac Ambassadors Bill, Lauren, Hayden and Clayton continue to discuss finding love when you have celiac disease.    This interview was conducted remotely and followed all COVID-19 protocols, as have all our podcast episodes filmed since the pandemic began.

In the upcoming weeks, a small group of Reach Beyond Celiac Ambassadors will sit down and talk about living with celiac disease. In this episode, Bill, Lauren, Hayden and Clayton discuss finding love when you have celiac disease.    This interview was conducted remotely and followed all COVID-19 protocols, as have all our podcast episodes filmed since the pandemic began. 

In this edition, Beyond Celiac CEO Alice Bast sits down with Kari Wells, producer and former cast member on the Bravo show Married to Medicine. They dive into Kari’s celiac disease journey, discuss the benefits of travel, offer advice for the newly diagnosed, and reflect on what has improved in our community over the last 20 years.    Note: This episode and all episodes released in 2021 have been filmed over video chat in accordance with COVID-19 social distancing protocols. 

In this episode of the Celiac Straight Talk podcast, Beyond Celiac CEO Alice Bast sits down with Miss Kansas USA Gracie Hunt as she recounts her transition from competitive athletics to the world of pageantry, and how her celiac disease journey has influenced her decisions along the way. This introspective conversation on unwanted, unexpected change and the stigma surrounding celiac disease has insights for anyone struggling to come to terms with a life that they could never have predicted. 

Beyond Celiac CEO Alice Bast and Chief Scientist and Strategy Officer Dr. Salvatore Alesci sit down with News Reporter Diana Rocco to discuss the Beyond Celiac strategy for finding treatments toward a cure for celiac disease by 2030.   To Beyond Celiac, a cure means those with celiac disease can live healthier lives and eat without fear. Our mission has evolved to one of advancing the science of celiac disease because we firmly believe that with a strategic approach to funding-focused research, an effective treatment or cure could be possible by 2030. With your support, Beyond Celiac will be the catalyst for the next wave of practical celiac disease research efforts.

Welcome to season three of the Beyond Celiac podcast, Celiac Straight Talk! We're excited to bring you more stories, research, and news about celiac disease. Our first guest is Jessica Kapusta, an entrepreneur who's putting her experience with celiac disease to good use by developing delicious gluten-free sauces. COVID-19 put a hold on manufacturing, but you can get a sneak peek at the taste with her new cookbook, John + Jane's Sauces (excerpt below). What led her to start her own food business? What were her barriers in getting diagnosed with celiac disease? And what did preliminary taste tests of the sauces reveal? Click the play button and find out!   John + Jane's Sauces: Pow Pow Sauce Ingredients: 1 cup mayo 1 tbsp hot sauce, chili oil, or red pepper flakes. Adjust quantity for heat preference 2 tbsp lemon juice 2 tsp garlic powder 1 tbsp gluten-free soy sauce 2 tsp maple syrup (can substitute honey, another sweetener, or leave out to make sugar-free) Step 1 and done: whisk all the ingredients togethe

The first podcast of 2021! In this episode director of communications, Claire Baker spoke with Courtney and Mitchell Gaer about celiac disease in their family. Courtney speaks on her experiences as a mother caring for a child with celiac disease and the journey of how Mitchell was finally diagnosed. Mitchell speaks about what it's like being diagnosed and living with celiac disease as a young man. He is now in college and offers great advice on successfully living gluten-free as a college student. We also touched on non-celiac gluten sensitivity (aka gluten intolerance) which they believe Mitchell's younger brother has. We thank the Gaer family for sharing their story with us as it offers great insight and advice for those whose lives are affected by celiac disease and gluten intolerances. 

We discussed Dr. Nadeau’s new book, The End of Food Allergy which is out now. Dr. Nadeau, who is on the Beyond Celiac Scientific Advisory Council answered viewer questions from the live stream and held a great conversation about different food allergies and diseases including...you guessed it! Celiac Disease. Download the Celiac Straight Talk Podcast on Itunes, Stitcher and Google Play Now!

The Gluten Free Destinations blog has become popular for those traveling on a strict gluten-free diet. Suzanne, the owner of the blog recently sat down with Beyond Celiac to share her experiences eating gluten-free around the world. She shares her own celiac disease story, tips and tricks for traveling on a gluten-free diet and more. You can find her Gluten Free Destinations blog HERE. Thanks to Suzanne for coming on! We enjoyed the conversation and hope you do as well. Enjoy. 

Emma Leger was a part of Beyond Celiac's very first summer intern council (SIC) for college students. She was a big hit when she shared her story on Instagram as part of the SIC Instagram takeover, so we're thrilled that her and her mom came back to share their story on the podcast. We covered what its like being a parent of a child with celiac disease, what its like growing up with celiac disease, challenges faced while attending college on a strict gluten-free diet, Emma's experience working with Beyond Celiac, and lots more! Big thanks to Emma and her mom for coming on! We hope you enjoy.

In episode 23 of the Celiac Straight Talk podcast we welcomed Julie Kennedy, registered dietitian and owner of Julie Kennedy Nutrition. They discuss Julie's journey with celiac disease, her work as a registered dietitian and her connection to Beyond Celiac. Julie can be found on her website Juliekennedynutrition.com and on social media @Juliekennedynutrition. We really enjoyed this one and hope you do too! For all of your celiac related information please visit BeyondCeliac.org.

Beyond Celiac is taking our entire 2020 Step Beyond Celiac 5K series to the virtual streets with a multi-city tour for individuals and teams across the country to support celiac disease research efforts. Five event dates are planned between August and October! Join us for one or many with our 3 and 5 city tour options. The Step Beyond Celiac 5K is a family-friendly event and fundraiser for Beyond Celiac. We encourage all participants to raise funds by running or walking 3.1 miles either in the event cities or right where you are in support of research efforts for treatments and a cure. Lace-up your running shoes, train, raise money, and run (or walk) a 5K (3.1 miles) to improve the quality of life for children and adults affected by celiac disease. All participants receive a Step Beyond Celiac 5K shirt if they register before the t-shirt deadline. 2020 5 City Tour 5k Schedule: Boston –  August 9 – 16 Kansas City – September  13  – 20 Philadelphia – September  26 – October 3 Dallas – October 10 – 18 Denver –

We talked with Michael Savett of the popular Gluten Free Philly blog. Beyond Celiac Director of Communications Claire Baker talks to Michael Savett of Gluten Free Philly about gluten-free life, his son's journey growing up with celiac disease and getting gluten-free goodies at Philly stadiums.

Asia shares her personal story with celiac disease. Find out what its like being 18 years old living with celiac disease. Asia addresses some of the unseen struggles that many people face while living with celiac disease. 

Part 2 On November 15, Beyond Celiac held its 2nd research summit. The 2019 Summit built on the results of our innovative 2015 summit, which was widely hailed as highly impactful and led to new scientific collaborations and sharpening of the focus of celiac disease physician scientists. Our 2019 summit took place against the backdrop of at least 12 clinical trials for celiac disease treatments. Our aim was to comprehensively address elements that must be in place to get a drug to market, including the remaining barriers in this decades-long journey to help patients with celiac disease. Listen as the patient panel share their stories about what its like living with celiac disease. Sharing your story will give researchers an up-to-date understanding of what life is truly like with celiac disease. It is only with information from people with celiac disease that we accelerate research, including that of the drugs in the development pipeline, in order to find a treatment for celiac disease. Your story is the missi

On November 15, Beyond Celiac held its 2nd research summit. The 2019 Summit built on the results of our innovative 2015 summit, which was widely hailed as highly impactful and led to new scientific collaborations and sharpening of the focus of celiac disease physician scientists. Our 2019 summit took place against the backdrop of at least 12 clinical trials for celiac disease treatments. Our aim was to comprehensively address elements that must be in place to get a drug to market, including the remaining barriers in this decades-long journey to help patients with celiac disease. Listen as the patient panel share their stories about what its like living with celiac disease. Sharing your story will give researchers an up-to-date understanding of what life is truly like with celiac disease. It is only with information from people with celiac disease that we accelerate research, including that of the drugs in the development pipeline, in order to find a treatment for celiac disease. Your story is the missing piec

In this podcast, the Beyond Celiac book club (Claire, Amy Maria and Bill) discussed In Memory of Bread by Paul Graham. A funny, poignant memoir of one man’s struggle to come to terms with his celiac disease diagnosis, forcing him to reexamine his relationship with food. This podcast was taken from the live zoom discussion held on the Beyond Celiac facebook page. The video can be found here. 

This is a special Beyond Celiac Book Club (BCBC) edition. The discussion is on the book I Contain Multitudes: The Microbes Within Us and a Grander View of Life by Ed Yong. Video of our May 20th discussion can be found on our facebook page. Enjoy!

Claire and Arturo Chacon Cruz chat (and sing) about his experiences with celiac disease, life during the pandemic, celiac awareness month and more. Audio taken from their Facebook live video from May 19, 2020.